AccessCNY’s advocacy efforts helps individuals with disabilities stand up for their rights and needs. Our dedicated group of staff and volunteers meets regularly with representatives of local, state and federal government to educate our elected officials on important legislation and regulations that affect people with disabilities and the community as a whole.

Health Care Decision and Individuals with Disabilities

AccessCNY also works with family members to ensure the needs of their loved ones are being met.

A new booklet on health care decisions highlights different options and procedures for making difficult end of life decisions for individuals with disabilities. The information is provided as a resource for families to begin thinking about these decisions before facing a terminal illness of a loved one. The booklet covers: health care proxies, medical decisions for individuals who lack capacity, Medical Orders for Life-Sustaining Treatment (MOLST), requests to withhold or withdraw life-sustaining treatment and non-hospital Do Not Resuscitate (DNR) orders. The guide serves as a summary of already existing regulations and is meant for informational purposes only.

Download the Health Care Booklet

How can You get involved in advocacy efforts?

1) Contact your elected officials and let them know where you stand on key issues like:

  • accessibility
  • stigma free mental health care

Find out who represents you.

2) Join an advocacy group. To find a group near you, please contact Sally Johnston, Advocacy Coordinator, at (315) 410-3370.IMG_3054_web

3) Stay informed. Keep an eye on the media to learn about developments in disability issues. Check back to AccessCNY’s website frequently, as we will post interesting links here.

4) See a problem in your community? Let us know what matters to you. Contact us.


Important Links

Info on New York State Medicaid

Americans with Disabilities Act

Disabled in Action of Greater Syracuse, Inc.